Monday, 20 October 2014

October 20th

IP Fact #20:

IP is a rare Ectodermal Dysplasia syndrome- there are more than 150 different ectodermal dysplasia syndromes all having different combinations of symptoms

Definitions !

According to the National Foundation for Ectodermal Dysplasias (NFED) A Family Guide to the Ectodermal Dysplasia Syndromes handbook,
“Before a developing fetus is large enough to be seen, a layer of cells covers the outside of the body. This layer of cells is called the ectoderm. Typically the hair, nails, teeth and/or sweat glands derive from this layer of the developing embryo, and thus any of these derived cells and tissues may be affected in the ED syndromes. In some cases, problems also may be noted with parts of the eye, ear or other organs and body features which develop from the ectoderm.”

They go on to explain dysplasia, “Dysplasia means literally “abnormal tissue growth”, in which a part of the body is not formed well. Thus, there is an inherent abnormality in the way a particular part of the body is put together.” “A disorder is considered to be an ED syndrome only when more than one ectodermal structure is affected.”

The NFED is a great source for information, research, support and assistance for all people affected with any of the ectodermal dysplasia diseases. If interested please contact them to become a part of their family as well.

On that note:

Huxman Run 2 Sweat

Worldwide 1-Mile and 5K Event Means You Run When You Can, Where You Can

benefiting the National Foundation for Ectodermal Dysplasias

October 1 - 31st, 2014

Check out their website!

Fun Fact: A condition called synesthesia can cause senses to overlap. In other words, some people can taste words or hear colors.

October is IP awareness month... Spread the word... spread awareness!

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