Wednesday, 1 October 2014


October 1st 

IP Fact #1: A guy named Garrod documented what seems to be the first case of Incontinentia Pigmenti in 1906, he described it as a “peculiar pigmentation of the skin in an infant”. However, it is mostly attributed to the man who keyed the term Incontinentia Pigmenti, Professor Bloch of Dermatology in Germany in 1926, after he described a two year old girl writing “the whole picture has something capricious and artificial about it, as if someone had painted completely irregular patterns on the skin”. Later Sulzberger documented in more detail on the patient and published the description in the English language literature. This resulted in it also being known as Bloch-Sulzberger syndrome.

IP is a rare disease that can affect the skin, hair, nails, eyes, teeth, central nervous system, mucous membranes, sweat glands and the immune system. It falls under the umbrella disease of Ectodermal Dysplasia. There is no cure, IP is lethal to the majority of boys who inherit or are spontaneous mutations of IP making them unable to make it to term during pregnancy and the variability in which it affects girls is completely random and widely different.

Fun Fact: Did you know that the skin accounts for around 15% of your body weight?!

October is IP awareness month... Spread the word... spread awareness!

We have managed to sell 100 T-shirts to support our IP Bio-Bank There is one day left of sales so if you have not got your T-Shirt yet and you want one to help then please do so asap by clicking the link below. The T-shirt Design is a limited Edition, so if you don't miss out.


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