Saturday, 6 September 2014


Well today is the day of the big crazy event, and we are still looking for your help to raise money for this rare genetic condtion. please  follow the links below . xxx

Team Maisie Moo invites you to join us in this CrAzY FUN Event.

We hope you will all join us for this FUN event. We have IPIF Family Members participating in an Insane Inflatables 5K. They will be running/bouncing/walking/skipping for Maisie Moo on the Boardwalk and Beach in Seaside Park, NJ, U.S.A
Sat 09/06/2014. 

We kindly ask that you choose the GOING option here to help us cheer them on from the sidelines and if you can by sponsoring their efforts to raise monies for Maisie Moo and all of her IP friends who are Family with us to the Incontinentia Pigmenti International Foundation (IPIF).

Check out this video to see what they will be doing for us on Sept 9th
Insane Inflatables 5K
New Jersey's Seaside Park | Insane Inflatables

Our Goal is to raise funds through donations for the efforts made at this cool 5K to help all of our IP Family. IP is Incontinentia Pigmenti a RARE genetic disorder that Our IP Angel Maisie has along with many others whom we have met over the years and care very dearly about.

Even two of Maisie’s little friends with IP Kylie (age 6) and Amy (age 7) are NOT sitting this event out they will be participating by trying the Insane Inflatable Kids Course & Obstacles to try and help her and all of their other IP friends

We Look Forward to this Special Day and Hope You will All Share in Our Excitement

- Donations or Sponsors please mail check made out to IPIF - (mailing address) 78 Saint Moritz Dr, Erial, NJ 08081 U.S.A. - or - me and I will mail them out all together

- Donations or Sponsors via PayPal - Team Maisie Moo - IPIF - Inflatable 5K

-Visit to learn more about our rare genetic disorder, Foundation and Mission x

GO TEAM Maisie Moo !!!!

- All contributions are tax deductible
- IPIF is a 501(c) 3 organization, duly organized as a Not-for-Profit Type B Charitable Organization under the laws of the State of New York.

Preview Video of Insane Inflatable 5K | Insane Inflatables

Along with the efforts of our live 5k team in New Jersey USA IPIF has made available until September 17th IP awareness T-shirts. 100 percent of all proceeds from the sales of these T-shirts will go directly to the IP BioBank for assistance in funding the much needed IP project for all of our families and the future of IP. Please follow the link below to make an order and again Please share with friends we can not possibly ever do this alone xxx Thank You for your Support, The IPIF Team

We have GoFundMe for our Foundation in honor of all of our families - The Set Goal for 2014 is 35,000 USD.
Our IPIF Family Goal is 20,000 USD
26,608.80 USD is the total goal for the funding of the IP BioBank. The other lead IP associations in France and Italy are also assisting with fundraising efforts towards this goal of the IP BioBank x
Incontinentia Pigmenti (IP) is a RARE genetic disease of the skin, hair, teeth,...

As we are all sharing and helping IPIF families around the World here is another way to give Hope all year long  We can Shop with Amazon Smile

When you shop at AmazonSmile, Amazon will donate to Incontinentia Pigmenti International Foundation....


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