This is our miss Arianna she is almost 8months now.... she was born with blisters all over her arms, legs, and some of her stomach. The drs thought she had some type of virus or bacterial infections so for four days she was on three different kind of antibiotics. While receiving meds the did constant test and blood work and when everything came back negative thats when they said they think it was IP. Arianna was found positive through biopsy and blood test. She is also a spontaneous mutation, no one in our family has it nor have we ever heard about this condition untill she was diagnosed with it . So far we are beyond blessed to say she hasn't had much symptoms just her skin and she did have to have lazer eye surgery but other than that shes doing awsome she hasn't shown any delays physically or mentally. She got her first tooth at 7month, her hair is still a little thin and she is determined to start walking. She does see alot of drs (gentic, dermatologist, orthopedic, eye dr and retnia specialist, neurologist, hearing dr, and physical therapist) mostly just to stay on top of her condition just so we can catch anything that may come up in time. Even though shes been doing so well we still deal with the "what if" that come with this condition so we try are best keep learning about this condition and most of all stay positive and strong for her and other two kids
This is our miss Arianna she is almost 8months now.... she was born with blisters all over her arms, legs, and some of her stomach. The drs thought she had some type of virus or bacterial infections so for four days she was on three different kind of antibiotics. While receiving meds the did constant test and blood work and when everything came back negative thats when they said they think it was IP. Arianna was found positive through biopsy and blood test. She is also a spontaneous mutation, no one in our family has it nor have we ever heard about this condition untill she was diagnosed with it . So far we are beyond blessed to say she hasn't had much symptoms just her skin and she did have to have lazer eye surgery but other than that shes doing awsome she hasn't shown any delays physically or mentally. She got her first tooth at 7month, her hair is still a little thin and she is determined to start walking. She does see alot of drs (gentic, dermatologist, orthopedic, eye dr and retnia specialist, neurologist, hearing dr, and physical therapist) mostly just to stay on top of her condition just so we can catch anything that may come up in time. Even though shes been doing so well we still deal with the "what if" that come with this condition so we try are best keep learning about this condition and most of all stay positive and strong for her and other two kids
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